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Diagnosis


Hey all, I thought you might be wondering what exactly wound me up in a wheelchair. There are several reasons, due to multiple conditions, however we believe my primary diagnosis of EDS is the cause of all my woe's.

Ehlers Danalos Syndrome Hypermobile Type:
Ehlers danalos syndrome is a genetic, connective tissue condition, that has the ability to mess up all of the bodies system. For me, it has effected my autonomic nervous system, my joints, my spine, my brain, my eyesight, my hearing.
Ehlers Danalos syndrome causes frequent subluxations (partial dislocations) and full dislocations. This understandable causes pain, and extra fatigue as my muscles are what hold my joints in place, and that isn't the way it's supposed to be! My ankles in particular but also my spine are unstable, and I suffer frequent subluxations throughout the day.

Postural Orthostatic Tachycardia Syndrome:
POTS is an autonomic nervous system dysfunction, when I change position (from laying to sitting, or sitting to standing) my blood pressure drops damatically, to make up for this and to stop me from fainting my body raises my heart rate to 100+ beats per minuetThis usually, ironically, causes me to faint despite my bodies best attempts.

So these are the two main reasons why I use a wheelchair, pain, fainting, fatigue. I'm learning to pace and starting to walk more again, which is great, but I'm not able to walk far or stand still which just isnt' realistic in so many circumstances.

I have other conditions too, but I don't feel they contribute massively to me being in a wheelchair.
Mast Cell Activation Syndrome,
Chiari Malformation,
Cervical Cranial Instablity,
Retrolisthesis,
Spondylisthesis,
Degenerative Disc Disease.

The spinal problems add to my pain levels, so I guess that contributes in a way? 

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